The Trust actively campaigns on a range of issues, ensuring that the patient voice is heard, to improve services for those affected by a liver condition, promote early intervention and diagnosis, and to raise awareness. Current campaigns include:
Love Your Liver
We launched our Love Your Liver campaign in 2012 to raise awareness, promote good liver health and offer practical advice to the public on reducing risk factors. The campaign includes community-based Love Your Liver screening and scanning events, supported by liver doctors and nurses from local hospitals, and media work to highlight the issues. For more information please visit our Love Your Liver website.
Responses To Consultations
Responding to consultations on behalf of those with liver conditions is a key part of the British Liver Trust’s work. Responses to recent key consultations are listed here
Alcohol Health Alliance (AHA)
As part of this group of 70 experts from industry and government we are campaigning for the introduction of a new alcohol strategy which calls for a 50p minimum price per unit of alcohol, mandatory labelling of alcohol with health and nutritional information, and a range of policies to address the health effects of the national issue of excessive drinking.
NICE Appraisal Committees
The Trust is part of a number of committees set up by the National Institute for Clinical Excellence (NICE) to represent the patient voice on subjects such as non invasive testing in alcohol related liver fibrosis, new drug treatments for liver related conditions, the viral Hepatitis Advisory Committee and the Obesity Forum.
Prescription Charges Coalition
The Trust is part of a group of patient organisations campaigning to extend exemption from prescription charges to all those with long term conditions. For more information please visit the campaign website.
Liver Patients’ Transplant Consortium
This group of charities relates to transplants, NHS and blood. We are currently working on the effects of the changes in the NHS on patient services, including the impact of Health and Wellbeing Boards, commissioning and equality of access to technology.
All Party Parliamentary Groups on Alcohol and Hepatology
We are active members of these groups to promote discussion of all alcohol and hepatological issues, to raise matters of concern with, and make representations to, government and other policy makers. View the latest report.
NHS Atlas of Variation in Healthcare for People with Liver Disease
This first ever report has highlighted the widespread variations across the across the country giving us the starting point for discussion with the underperforming regions to identify how they plan to improve services and reduce inequality for liver patients. View the report.
The Lancet Liver Commission
The Trust is a member of the Lancet Liver Commission. The Commission made specific recommendations in its first report (published November 2014) to reduce unacceptable premature mortality from liver disease in the UK. Progress to the recommendations will be reviewed each year for the next 5 years. The second report (published November 2015) shows that there has been some progress, for example with Hepatitis C, but it also highlights the urgent need for more to be done. In particular
- The need for much earlier detection of liver disease by GPs
- The need for equitable effective liver services for all – at the moment there is a postcode lottery for patients with liver disease with many being unable to access specialist care
- Stronger leadership from the Government to tackle the underlying causes of the dramatic increase in liver disease – alcohol misuse and obesity
The British Liver Trust is determined to keep these issues on the public health agenda.
Hepatitis C – New Treatments
Recent requests from NHS England to NICE to delay new hepatitis C treatments are not in the best interests of patients – see our consultation responses:
Wales Liver Disease Plan
The Trust is part of the delivery team for the Wales Liver Plan. Please see our initial response to the Plan here: BLT response to Welsh liver disease delivery plan 060115
James Lind Alliance
The Trust is working with the James Lind Alliance on two projects to gain public, patients, clinicians, researchers and other stakeholders’ opinions on what research should be addressed in both Non-Alcohol Related Liver Disease and Alcohol Related Liver Disease. Please see more at the James Lind Alliance website.
Liver Task Force
The Trust works with the Liver Task Force to develop and implement actions including commissioning frameworks; patient protocols; patient related outcome measures and patient related experience measures.