Acute fatty liver of pregnancy
Description: A website with information on acute fatty liver of pregnancy with links and a forum for families who have been affected by this condition and who would like to be in contact with others with a similar experience and maybe living in their area.
Contact name - Marjorie Nimis
Email - marjorie@acutefattyliverofpregnancy.co.uk
Website - www.acutefattyliverofpregnancy.co.uk
ALTA Addenbrookes Liver Transplant Association
Description - based in Cambridge, provides support for liver transplant patients and their families before, during and after transplantation for Addenbrookes patients.
Website - www.alta.org.uk
Anam Cara Living Centre
Description - a support group for members and their families affected by hepatitis C, based in Glasgow.
Contact name - Francesca Wilson and Rena Cairns
Telephone - 0141 336 8093/5385
Email - anam-cara@btconnect.com
Website - www.anam-cara.org.uk
Autoimmune Hepatitis online support resource
Description - provides information and advice to anyone affected by autoimmune hepatitis in the UK and abroad.
Contact name - Matt Hastings
Telephone - 0845 370 0997 (Helpline)
Email - AIH [at] WowRetail.com
Website - www.autoimmunehepatitis.co.uk
Auto-Immune Hepatitis Support Group Edinburgh
Description – Welcomes anyone in the Edinburgh area with AIH or those affected by it for social meetings in the city
Contact Name - Ruth Ford
Telephone – 0131 467 1718
Basildon and Thurrock Hepatitis C Support Group
Description - Welcomes anyone in the Basildon and Thurrock area with Hep C or those affected by it for social meetings in the Basildon
Contact Name - Sarah Tarff
Telephone - 0845 155 3111 ext 3078
Bath and Bristol Hep C Support group
Description - Online support for people with transfusion contracted Hep C.
Contact name - Julie
Email - misshummingbird2003@yahoo.co.uk
Birmingham Hepatitis C Support Group
Description - A support group for members and their families affected by hepatitis C, based in the West Midlands.
Contact Name - Tamelia Hamilton
Telephone - 0121 301 1600
Email - tamelia.hamilton@bsmhft@nhs.uk
Website - www.bsmht.nhs.uk
Blackburn Hepatitis C Support Group
Description - Welcomes anyone in the Blackburn area with Hep C or those affected by it for support. Meets first Wednesday of every month at 6pm at The Thomas Project, St Annes House, France Street, Blackburn.
Contact Name - Jenny Wadsworth
Telephone - 01254 669434
or 07939 935585
Email - jenny.wadsworth@bwdpct.nhs.co.uk
Blackpool Hep C Support Group
Description - Welcomes anyone in the Blackpool and Preston area with Hep C or those affected by it.
Contact Name - Jo Donoghue
Telephone - 07908 805185
Email - jdonoghue@druglinelancs.co.uk
Website - www.druglinelancs.co.uk
Brighton Hep C Support
Description - A support group with regular meetings for people with and families affected by hepatitis C in the Brighton area.
Contact Name - Richard Hall
Telephone - 01425 481 320
C-Level
Description - Runs a number of support groups in Glasgow: download programme
Contact Name -
Telephone - 0141 332 2520
Email - info@c-level.org.uk
Website - www.c-level.org.uk
C the Difference
Description - A support group for those with hepatitis C in the Merseyside area.
Contact name - Francis Cook
Telephone - 0151 647 2162
Email - francis.cook@ntlworld.com
Cardiff Hepcats Support Group
Description - welcomes people with any kind of liver disease or those affected by it.
Contact name - Paul Bennett/Stephen Prendergast
Telephone - 0781 048 8899
0787 926 4313
Email - paulbennett2000@ntlworld.com
stephenprendergast@yahoo.co.uk
Cornwall Gwelheans Hepatitis C Support
Description - Providing support to Hep C sufferers in Cornwall
Contact Name - Alan May/Sally Cook
Telephone - 01209 215000
Email - contact@kernow-hepc.org
Website - www.hepc-kernow.org
Cornwall Hepatitis C Support Group
Description - Providing support and social events to Hep C sufferers in Cornwall
Contact Name – John and Chrissy Semple
Telephone – 01326 569048
Email – info@cornwallhepcsupportgroup.org.uk
Website - www.cornwallhepcsupportgroup.org.uk
Cumbria Support Group Description - welcomes anyone in the Cumbrian area with any kind of liver disease or those affected by it.
Contact Name - Ruth Harrison
Telephone - 01228 814 742
Email - ruth.harrison@ncumbria-acute.nhs.uk
C-Plus
Description - is a hepatitis C support group based in Edinburgh. The group provides one to one telephone support.
Telephone - 01314 787929 (Helpline Monday - Friday 9:30 until 4:30)
Derbyshire Hep C Support
Description - support group held for people who are undergoing treatment for Hepatitis C, have the virus or have been affected by Hepatitis C including family and friends. Our meets are non formal and are here to provide non-judgemental support and advice. It is also a chance for like minded people to meet up and share their experiences.
Contact name - Catherine
Telephone - 07977 492065 after 6pm weekdays/ anytime weekends
Email - hepcderby@btinternet.com
Website - www.hepcsupportderbyshire.co.uk
Venue - Chestergreen Community Centre, Derby 2nd Thursday of every month 6pm-8pm
Dorset Hep B/C Support Group
Description - support group held for people who are affected by Hepatitis B or C in Bournemouth, Poole and surrounding areas.
Contact name - Richard
Telephone - 01425 481320
Dudley Hepatitis C Support Group
Description - Welcomes ahyone in the Dudley area with Hep C or those affected by it for social meetings in the city.
Contact name - Kate Drysdale
Telephone - 01384 426120
Email - kate.drysdale@dudleywarehouse.org
Essex Hep C Support group
Description - A support group for those with hepatitis C in the Essex area. The group meets on the second Wednesday of every month from 6pm to 8pm.
Contact Name - Sue Barthee
Telephone - 020 8491 1576
Email - sue.barthee@redbridge-pct.nhs.uk
Essex Liver Support
Description - welcomes anyone with any kind of liver disease or those affected by it. They also offer support to neighbouring counties around Essex.
Contact name - Debbie Eady
Telephone - 01799 500 622
Email - essex.liversupport@ntlworld.com
Website - www.essexliversupport.co.uk
Exeter Liver Support Group
Meets on the second Tuesday of every month at 6.30pm, Medical Outpatients Department, Rotal Devon & Exeter Hospital. Drop in service, NO APPOINTMENT NECESSARY, Just turn up.
Contact Name: Anna
Telephone: 01392 402728
Forth Valley Hep C Support Group
Description - Welcomes anyone in the Forth Valley area with Hep C or those affected by it.
Contact Name - Petra Wright
Telephone - 07742 407839
Email - FVC4TH@aol.com
Haemochromatosis Merseyside and NW Support Group
Description - Welcomes anyone with any Haemochromatosis or those affected by it, and offers individual support and regular meetings.
Contact Name - Pat Waddington
Telephone - 0151 427 7246
Email - haemochromatosis@patandbob.co.uk
Website - www.haemochromatosis-merseyside-nw.org.uk
Haemochromatosis Society
Description - supports patients and their family affected by haemochromatosis in the UK and abroad. The general public, policy makers and medical professionals are also welcome.
Contact name - Janet Fernau
Telephone - 0208 449 1363
Email - info@haemochromatosis.org.uk
Website - www.haemochromatosis.org.uk
Haemochromatosis Support
Description - an enquiry service for people concerned about haemochromatosis.
Contact name - Alan Mannering
Telephone - initially by e-mail
Email -
alan.mannering@btopenworld.com
Website - www.mysilentillness.co.uk
HC Voice Support
Description - welcomes anyone in the Brighton area with Hep C or those affected by it.
Contact Name - Lewis Husband
Telephone - 07771 970 138
Email - info@hcvoice.org.uk
Website - www.hcvoice.org.uk
Helping Hands
Description - A support group based in Bristol offering regional support to Liver sufferers, various venues
Contact name - Brian Meek
Telephone - 01454 311891
Email - brianmeek1@aol.com
Hep C Nomads Support Groups
Description:
Online support forum for those affected by hepatitis. Originally set up for HCV patients they have now included a HBV section on their forum. It includes news on latest research, published papers on HCV, treatment and new drug trials. It can only be viewed by registering and all membership is free. Carers and health professionals are also members and all are welcome.
Contact name - John and Chrissy Semple
Telephone - 01326 569048
Email - hepcnomads@googlemail.com
Website - www.hepcnomads.co.uk
Hepatitis C Trust Support Groups
Description - Support groups for those with hepatitis C in the London area. The Hepatitis C Trust runs four groups to help people living with Hepatitis C: one for gay men, a women's group, a mixed general group and another mixed group specifically for for people not on treatment. For more details please see website.
Contact name - Sam
Telephone - 0845 223 4424
Website - www.hepctrust.org.uk
Email - helpline@hepctrust.org.uk
Hepatitis C Support Group (Manchester)
Description - a support group for patients and those who may be affected by hepatitis C.
Contact name - Jane
Telephone - 07854771213
Islington and Camden Hepatitis C Support Group
Description - Welcomes anyone in the Islington and Camden area with Hep C contracted via IDU or those affected by it for support in N.London
Contact Name - Victoria Leenders
Telephone - 0207 530 2033
Ipswich HepC Group
Description - Ipswich based group which meets every other month to offer mutual support.
Contact name - Erica Wildwood
Telephone - 07837 667072
LISTEN
Description - is a patient led support group. It has been established to provide help and information to King's Hospital patients with liver disease. The committee holds regular meetings within King’s College London. The group has members that have had transplants and also who are partners, relatives or friends.
Email - e-info@listenatkings.or.uk
Website - www.listenatkings.org.uk
LIVAGAIN Liver Cancer Support Group
Description – Livagain welcomes anyone in South East England with secondary Liver Cancer from Bowel Cancer or those affected by it for support, encouragement, professional advice and guidance and up-to-date relevant information in the Croydon area
Contact Name – Heather Mann
Telephone – 020 8668 0974
Email – info@sechc.org.uk
Website - http://www.sechc.org.uk/Support-Groups/liver-cancer-support-group.html
Liver North
Description - is a regional liver patient support group for northern England. The group offers advice, support, counselling and assistance to all adult liver patients, their carers, families and clinicians via meetings, a website, newsletters and personal contact.
Telephone - 0191 370 2961
Email - info@livernorth.org.uk
Website - www.livernorth.org.uk
Liver Transplant Support
Description - is a virtual support website. This site gives the opportunity to read other people’s stories of their experiences of liver transplantation in their own words. The visitor is able to add their own personal text to the site for others to read. There is a forum that the visitor is invited to participate in where there is a menu of discussion points.
Contact name - George Bailey-Haigh
Telephone - (web based)
Email - info@livertransplantsupport.org
Website - www.livertransplantsupport.co.uk
Macclesfield Hepatitis C Support Group
Description – Welcomes anyone in the East Cheshire area with Hep C or those affected by it for social meetings in the Macclesfield
Contact Name – Tara Woodhouse
Telephone – 07826 893226
Email – macchepcsupport@googlemail.com Website – www.macchepcsupport@btik.com
Manchester Hep C Support Group
Description - Based at Glentop House, welcomes anyone in the Greater Manchester area with Hep C or those affected by it. First Wednesday of every month 4.30pm - 6.00pm
Contact Name - Deborah Carr
Telephone - 0161 837 3369
Manchester Royal Infirmary Liver Patients Support Group
Description A Support group in the Manchester area. All sufferers welcome
Contact name - Pam Lugaric
Telephone - 01706 881799
Email - paul.lugaric@ntlworld.com
Website - www.manchesterroyalinfirmary.ltsg.org/
New Beeches Hepatitis C Support
Description - welcomes anyone in the Manchester area with Hep C or those affected by it.
Contact Name - Beverley Buckley
Telephone - 0161 882 2200
Email - Beverley@bpnw.org.uk
Website - www.bpnw.org.uk
Norfolk and Norwich Liver Group
Description - regularly hold events to join in with if you are in the Norfolk or Norwich area.
Contact name - Marjorie Dingle
Email - marjorie.dingle@hotmail.com
North Cumbria Hep C Support Group
Description – Ruth welcomes anyone in the North Cumbrian area with any kind of liver disease or those affected by it, and runs a group meeting for Hepatitis C.
Contact Name - Ruth Harrison
Telephone - 01228 814 742
Email - ruth.harrison@ncumbria-acute.nhs.uk
Norwich Hepatitis C Support Group
Description - aims to provide support to all those who are affected by the hepatitis C virus.
Contact name - Tony
Telephone - 01603 449658
Email - hepcnorf@yahoo.co.uk
Website - www.norwich-hepc.org.uk
Obstetric Cholestasis Support
Description - provides support and advice for women affected by Obstetric Cholestasis, their families and health professionals - based in Birmingham and London.
Contact name - Jenny Chambers
Email - jennyChambersOC@aol.com
Website - www.ocsupport.org.uk
Oldham Hep C Support Group
Description - welcomes anyone in the Oldham and Manchester area with Hep C or those affected by it. Fortnightly Meetings
Contact Name – Laura Foster
Telephone - 0161 909 8243
Email – laura.foster@nhs.net
Oxford Hepatitis C peer support group
Welcomes all those with Hep C, and those who support someone who is. Last Tuesday in the month, 1.00pm to 2.00pm. Drop in service, NO APPOINTMENT NECESSARY, Just turn up.
10b Littlegate Street, Oxford, OX1 1QT.
Phone: 07824408193 for details
Plymouth Liver Support Group
Launching in March 2012, for further information please contact Mike Campling: mike.campling@britishlivertrust.org.uk
Portsmouth Liver Support Group - Meet first Saturday of every month from 12.30pm to 2pm.
Currently meeting in the day room on ward C5, Princess Alexandra’s Hospital, Cosham. Group started as Hep C group but now covers all liver conditions. Drop in service, NO APPOINTMENT NECESSARY, Just turn up.
The group also plans to meet every third Wednesday of the month starting in March 2012, time and venue to be confirmed.
Contact Name - Jason or Dave
Telephone - Jason 07866 044975 or Dave 07983 539160
PSC Support
Description - is a national support group in the UK with worldwide membership for people affected by PSC, including parents and carers.
Contact name - Martine Walmsley
Telephone - 01772 335519
Email - chair@pscsupport.org.uk
Website - www.pscsupport.org.uk/
PSC Trust
Description - is a national support group in the UK for anyone living with PSC.
Contact name - Dr Kartar Badsha
Telephone - 01704 514377
Email - drbadsha@psctrust.com
Website - www.psctrust.com
Queen Elizabeth Hospital Birmingham Liver Support Group
Description - was founded in 1993 and offers a wealth of information to Q.E. liver patients, carers and families, monthly meetings.
Contact name - Alan Hyde
Telephone - 01902 679 333
Email secretary@qelsg.infoweb.org.uk
Website - www.uhblsg.org.uk
Royal Free Hospital Liver Patients Support Group (for Royal Free Patients Only)
Description - A support group for Royal Free patients only with quarterly newsletter
Contact Name - Trefor Gore
Telephone 0207 794 0500 x34909
Website www.liverlink.co.uk
Royal Victoria Hospital Liver Support Group
Description - is based in Belfast and provides support and advice to patients with liver disease and their families throughout Northern Ireland.
Contact name - Seamus Cunningham
Telephone - 07769 945534
Website - www.rvhliversupportgroup.org
Salisbury Hepatitis Support Group
Description - A support group for members and their families affected by Hepatitis C, based in the Salisbury area.
Contact name - Val
Telephone - 07737296189
Email - gbbnsv@aol.com
Sheffield HepC Support
Description – support group held for people who are undergoing treatment for Hepatitis C, have the virus or have been affected by Hepatitis C including family and friends. Our meetings are informal and are here to provide non-judgemental support and advice. It is also a chance for like minded people to meet up and share their experiences.
Contact Name – Thea Williams
Telephone - 0114 226 1142
Venue – Alternate Wednesdays at St Judes, 14-18 West Bar Green, Sheffield, S1 2DA
South East Kent Hepatitis Patient Support - is open to anyone affected by hepatitis B or C, including carers. The group offers the chance to meet others in similar circumstances and the opportunity to share coping strategies and receive moral support.
We are based in Whitstable and meet at Whitstable Umbrella Community Centre, St. Mary’s Hall, Oxford Street, Whitstable, Kent .
Email - hepatitiscandb@gmail.com
South West Essex Hepatitis C Support
Description - welcomes anyone in the Essex area with Hep C or those affected by it.
Contact Name - Helen Blower
Telephone - 07790 925225 (between 1pm and 8pm)
Email - h.blower278@btinternet.com
St James’s Liver Transplant Support
Description - is the official liver transplant support group of St.James Hospital in Leeds. The group is encouraged and supported by doctors, nurses and staff at the liver unit.
Contact name - Janet Atherton
Telephone - 01942 704385
Email - ajantath@aol.com
Website - www.stjamesltsg.org
Stockport Hepatitis C Support Group
Description - Welcomes anyone in the Stockport area with Hep C or those affected by it for social meetings in the city
Contact Name - Wendy Yuille
Telephone - 0161 249 4000
Email - wendy.yuille@nhs.net
The BHA Hepatitis C Support Project provides one to one peer support for those affected by Hepatitis C. The project has a team of Expert Patient Support Workers who have experienced Hepatitis C and treatment. For queries or more information, please contact Shabana Baig or Angela Mason at BHA on 0161 874 2173/2166 or visit http://www.blackhealthagency.org.uk/
The North C
Description - A support group with regular meetings for those people and families affected with Hepatitis C in the Newcastle-Upon-Tyne area.
Contact name - Brian Boyd
Telephone - 07895 913349
Email - ncastlehepcsupportgroup@googlemail.com
Torquay Hepatitis C Support Group
Description - Welcomes anyone in the Torbay and Newton Abbott area with Hep C or those affected by it for social meetings in Torquay.
Contact Name - Virginia Compton
Telephone - 01803 604330
Email - virginia.compton@nhs.net
Trowbridge Hep C Support
Description - A support group with regular meetings for people with and families affected by Hepatitis C in the North Wiltshire area.
Contact name – Moses
Telephone – 01225 775 558
Weymouth Hep C Support
Description - A support group with regular meetings for people with and families affected by hepatitis C in the Weymouth area.
Contact Name - Jennie Marks
Telephone - 07773 547 383
Email - dsuforum@yahoo.co.uk
West Midlands Haemochromatosis Support Group
Description - A support group for members and their families affected by Haemochromatosis, based in the West Midlands.
Contact name - Bernard Kelly
Telephone - 01564 823849
Email - rustings@hotmail.com
Website - www.haemochromatosiswm.org.uk
or www.mysilentillness.co.uk
Wilsons Disease Support Group
Description - is a national support group for those living with this rare genetic disorder in the UK.
Contact name: Valerie Wheater
Email - val@wilsons-disease.org.uk
Website - www.wilsonsdisease.org.uk
Wrexham Suport Group
Description - welcomes anyone with any kind of liver disease or those affected by it.
Contact Name - Peter Sharratt
Email - wrxsutsc@hotmail.com
York Support Group
Description - Fortnightly meetings held at Friends Meeting House, Friar Gate, York
Contact name - Mark Bird
Telephone - 07729 852009
Email - markyacro@hotmail.co.uk
Please also see the patient organisations page for further links.
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An enormous amount of work is being done by numerous support groups in an effort to provide improved support and services for patients with liver disease, their relatives and carers.
Above: Dorset Hep B/C support group raising awareness on World Hepatitis Day. Learn more...
There are many different types of support groups, our definition of a support group is:
A group of people who work together for the mutual sharing of peer support on a voluntary basis in order to help themselves and others through the difficulties associated with liver disease.
If you are connected with a support group which you would like to see listed, or feel that yours has been incorrectly listed, please contact Richard Hall on 0800 652 7330 or email Richard.Hall@britishlivertrust.org.uk |