Who else can help?

Support groups
There are numerous support groups around the UK. Support groups can offer support, counselling and an opportunity for you to share your experience with others. You will also meet and talk to plenty of people who have lived many years with their transplant. This can help if you are finding the whole transplant process quite daunting. If your local transplant unit does not have a link to a local support group, contact the British Liver Trust for details of your nearest organisation.

Liver Transplant Support
Westlake Farm
Monkokehampton
Winkleigh
Devon EX19 8AX
Tel: 0845 270 7760 (please email in the first instance)
Email: info@livertransplantsupport.org
www.livertransplantsupport.co.uk
On-line advice and information for potential liver recipients from people who have first hand experience of transplantation – ‘help by those who have been there’.

UK Transplant
Tel: 0117 975 7575
Email: enquiries@uktransplant.nhs.uk
www.uktransplant.org.uk
Part of NHS Blood and Transplant and the official NHS transplant site. It provides news, information and resources about organ transplantation, real life stories from those who have benefited from transplants and a facility for potential donors to sign on to the organ donor register.

Transplant Support Network (TSN)
6 Kings Meadow Drive
Wetherby
West Yorkshire LS22 7FS
Telephone support line: 0800 027 4490/4491
Email: tsnetwork@tiscali.co.uk
www.transplantsupportnetwork.org.uk
Nationwide network and registered charity supporting patients, family and carers of all solid organ transplants and mechanical implants.

Live Life Then Give Life
www.livelifethengivelife.co.uk
A charity that raises public awareness of organ donation and the chronic lack of organ donors in the UK.

OTIS
The Organ Transplant Information System (OTIS)  
Patient education service provided by Roche Products Ltd. OTIS is a computer based, interactive, multimedia learning
programme – a tool to help transplant patients prepare for their surgery, learn their post-transplant medications and to monitor and optimise their health status.

OTIS is designed to complement the ongoing activities of transplant centres during the pre-transplant period, in-hospital stay and subsequent clinic visits. OTIS delivers information that can be tailored to each patient’s specific needs, at each stage of therapy, based upon an updated patient profile. OTIS is supplied to NHS Trusts and delivered within the transplant centre. For more information regarding OTIS please email welwyn.otis@roche.com  

PA your transplant personal asistant
PA 
A transplantation support service that has been produced and funded by Astellas
Pharma
Ltd.
The service is free and confidential for those patients who are being considered for or who have undergone a liver transplant. The purpose is to provide patients with access to the information needed to support them from the time transplantation is actively being considered, through to the transplant and beyond. The programme is delivered through literature materials, a website, a freephone helpline and a DVD. Patients can join the PA Transplantation support programme by telephoning their helpline on 0800 009 3540 or logging on to the website at www.PAtransplantation.com 


The Transplant Trust 
Albion House
Albion Street
Lewes
BN7 2NF
Telephone: 07786 367 572
Email:
info@thetransplanttrust.org.uk 
 
Web: 
www.thetransplanttrust.org.uk
 
A national charity that raises awareness of organ and tissue donation by encouraging people to talk about, and register, their willingness to donate.