Who else can help?

British Porphyria Association (BPA)
Tel: 01474 369 231
Email: helpline@porphyria.org.uk
Web: www.porphyria.org.uk
Through meetings, advice, counselling, published information and its website, the BPA aims to reach out to as many people as possible – patients, health professionals and those involved in research – to improve understanding of this rare condition.

European Porphyria Initiative (EPI)
Email: info1@porphyria-europe.com
Web: www.porphyria-europe.com
The EPI aims to present an up-to-date approach to the understanding of porphyria, focusing in particular on the prevention and treatment of acute attacks, providing information and support to families affected by porphyria, and supporting and encouraging medical research.

The Cardiff Porphyria Service
Web: www.cardiff-porphyria.org
The Cardiff Porphyria Service specialises in the diagnosis and treatment of the porphyrias in the UK. The Service website has a range of information resources of interest to both health professionals and patients.

The Drug Database for Acute Porphyria
Web: www.drugs-porphyria.org
An international drug database for porphyria that provides a list of medicines available in the UK. Including both generic and UK trade names, the website provides a full list of the drugs are safe or unsafe for people with porphyria.

Porphyria
information from the University of Cape Town
http://web.uct.ac.za/depts/porphyria