Advice from patients and carers


If you have any tips or advice you would like to share on living with liver disease please contact us.

"Don't feel ashamed or embarrassed about your condition and don't let yourself become isolated. There are many people out there who want to help from your loved ones through to the dedicated doctors and nurses who deal with the medical and mental issues you may have."

"Most importantly don't forget the people close to you are affected by your illness too. They can become alienated or sidelined if you leave them out of your day to day worries and concerns about your future."  Phil, Hants

"Liver disease is very hard because it affects the whole person in so many ways.  Understanding what is going on, including all the strange extraneous symptoms, such as debilitating cramps and itching, and the little things that we as carers can do to help, can make it so much easier to cope." 

"But most of all, being able to put our arms around our loved ones and let them know that we understand what is happening to them is one of the most important things we can do." Lynda, Surrey

"My advice to anyone with liver disease is to make sure you are sent to the appropriate consultant by your GP,and to find out what lifestyle changes you can make to help with your liver disease."

"All the information I have found out about my Autoimmune hepatitis has been from the British Liver Trust's website and the brochures that the Trust has sent me. Some sites can be quite scary and worrying, so I personally think it's best to see someone who specialises in your particular disease." Linda, Berks 

"I was diagnosed with Hep C genotype 3C over 6 months ago after volunteering to give blood. I’m glad I did but being informed I was infected as you may appreciate came as a shock. Then came the guilt, feeling of being completely alone and constantly trying to work out how I became infected. It's really is lovely to be able to talk about this...I wish I'd found this great community months ago! " Hep C Nomads forum