Patient and carer support
Action on Addiction – The M-PACT(UK) Project
M-PACT (UK) is the result of a growing awareness that services for children and young people suffering the consequence of parental substance misuse have been limited, fragmented or non-existent across the UK. Our main objective is for the programme to be available to as many children and young people as possible to help to improve their quality of life.
Tel: 0845 126 4130
www.actiononaddiction.org.uk/family_support/parents_and_children
Alpha 1 Awareness UK
UK Charity supporting sufferers of Alpha 1 Antitrypsin Deficiency, a genetic condition, which in adults affects the lungs and in infants, children and some adults affects the liver, in severe cases liver transplants are needed.
Email: secretary@alpha1awareness.org.uk
www.alpha1awareness.org.uk
Alpha-1 Foundation
A not-for-profit Florida corporation dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency. Alpha-1 is a hereditary condition which may result in serious lung disease in adults and/or liver disease in infants, children & adults.
Tel: 001 305 567 9888
Email: info@alphaone.org
http://www.alphaone.org/
Alpha-1 UK Support Group
UK support group run by alphas for alphas, to help and advise fellow sufferers, and backed by the UK's leading medical experts in the field of Alpha-1 Antitrypsin Deficiency. Provide support and education for individuals, families, carers and friends who are affected directly or indirectly by Alpha-1 Antitrypsin Deficiency and to grow a social network for patients, by providing a discussion group focusing on how better to cope with their condition, aiming towards improving quality of life.
http://www.alpha1.org.uk/
BACP British Association of Counselling and Psychotherapy
They have an online directory to search for a professional counsellor in your area, or you can telephone to be sent a list.
British Association of Counselling and Psychotherapy
BACP House
15 St John’s Business Park
Lutterworth
Leicestershire LE17 4HB
Tel: 01455 883 316 or 01455 883 300
Email: bacp@bacp.co.uk
www.bacp.co.uk
CAAAD
Community based drug and alcohol project specialising in easy to access harm reduction services for people concerned about their own or someone else's drug or alcohol use. They provide support, counselling, hepatitis support service, complementary therapies and up-to-date information on drug and alcohol related issues. Based in Bristol.
Contact name - Nigel O'Malley
Tel: 0117 904 2298
Email: caaad@btconnect.com
www.bartonhillsettlement.org.uk
Carers Direct
Free, confidential information and advice to help you as a carer. Lines are open 8am - 9pm Monday to Friday, 11am - 4pm at weekends. Calls are free from UK landlines.
PO Box 4338
Manchester
M61 0BY
Tel: 0808 802 0202
Email: CarersDirect@nhschoices.nhs.uk
www.nhs.uk/carersdirect
Children’s Liver Disease Foundation (CLDF)
The first charity to be established concerned with liver disease. Today it helps to care for babies and children with liver disease and their families through support, information and research in the UK.
www.childliverdisease.org
Counselling Directory
The purpose of the site to provide the UK with a counselling support network, enabling those in distress to find a counsellor close to them and appropriate for their needs. This is a free, confidential service. The website also contains a number of sections on emotional disorders (types of distress section) and provides some useful statistics.
http://www.counselling-directory.org.uk/
Expert Patients Programme CIC
Expert Patients Programme (EPP) courses are FREE and help people to improve their health and wellbeing by learning new skills to manage their condition on a daily basis. People who have already attended courses have told us it has helped them to deal with their pain, tiredness, feelings of depression, frustration and other difficulties that may come from living with a long-term condition.
Freephone: 0800 988 5550
Email: get.info@eppcic.co.uk
http://www.expertpatients.co.uk/
Hepatitis Scotland
Hepatitis Scotland is the national third sector organisation in Scotland, funded by the Scottish Government to provide support and leadership to voluntary sector organisations in tackling viral hepatitis in Scotland.
www.hepatitisscotland.org.uk
Hypnotherapy directory
Lists qualified/registered hypnotherapists for support with issues such as alcohol dependency or weight loss.
Tel: 0844 8030 242 (Lo-call rate) - between 9am and 5pm Monday to Friday
http://www.hypnotherapy-directory.org.uk/
Marie Curie
Marie Curie Nurses provide free nursing care to cancer patients and those with other terminal illnesses in their own homes. For more information for patients and carers or to get a Marie Curie Nurse call FREEPHONE 0800 716 146. To find out more about the services where you live, please call 08707 585 868. For general enquiries please use the telephone numbers listed below:
England – 020 7599 7777
Scotland – 0131 561 3900
Wales – 01495 740827
Northern Ireland – 028 9088 2060
www.mariecurie.org.uk
The Haemophilia Society UK
National charity that provides information and support for people affected by haemophilia, von Willebrand's and related inherited disorders.
Helpline - (10am - 4pm) 0800 018 6068
www.haemophilia.org.uk
The James Lind Alliance
Charity which aims to identify the most important gaps in knowledge about the effects of treatments. It has been established to bring patients and clinicians together in ‘Working Partnerships’ to identify and prioritise the unanswered questions that they agree are most important.
Tel: 01865 517635
Email: patkinson@lindalliance.org
www.lindalliance.org
The Patients Association
Charity providing patients with an opportunity to raise concerns and share experiences of healthcare. Through their Helpline, correspondence and research they learn from patients the issues that are of concern and work towards improving healthcare.
Tel: 0845 608 4455
Email: mailbox@patients-association.com
www.patients-association.org.uk
UK Self Help Groups & Support Organisations
Contact details for support groups & organisations
www.ukselfhelp.info