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Living With Liver Disease

Managing your liver condition

Liver disease is complex, varied and fluctuates, meaning that no one person’s experience of liver disease is the same as another. Your experience of liver problems may vary from day to day. This is partly because the liver has a huge number of functions and so liver failure can affect almost every part of your body and the way you feel.

This guide is for people living with a liver condition, and their families, to explain some of the emotional, physical and practical problems of the disease. It will help you to manage your condition by suggesting questions to ask, choices which you can make for your care and highlighting the help and services which are available.

“Treat every day in as positive a manner as you can. Don’t ask yourself ‘Why me?’ as you cannot change the past.” 
Phil, Hampshire

I always find when talking to people about my own liver condition, I refer to how I live around and with it.” Judith, Birmingham

Some sections contain information for people with advanced liver disease and serious symptoms. It is important to remember that many people do not experience severe problems from their liver disease and much of this information may not apply to your condition. If you have questions about the information in this publication, please discuss this with your medical team.

Being Diagnosed with Liver Disease

Accessing the Right Care

Things to Consider About Treatment

Looking After Yourself

Looking After Someone with Liver Disease

Understanding Your Rights

Who Else Can Help

Support

Please visit the support section of our website for information on Support groups in your area.

NICE Guidance on Assessment and Management of Cirrhosis and NAFLD

NICE have published two new guidelines on the assessment and management of Cirrhosis and Non-Alcohol Related Fatty Liver Disease (NAFLD) in liver patients. NICE aims to help people get the best care no matter who they are or where they live. Your healthcare team should know about what NICE has said in its guidelines on Cirrhosis and NAFLD. Talk to your doctor if you don’t think you are getting the care NICE has said you should have. Details of the guidelines are:

Cirrhosis in over 16 year olds – This guideline aims to:

  • help doctors find out if you have cirrhosis as soon as possible, to stop it getting worse and improve your liver’s health
  • make sure specialists see you, so that you get the best treatment and support
  • make sure you are regularly checked for complications so that they can be treated.

See the full guidance by clicking here. 

Non-Alcohol Related Fatty Liver Disease (NAFLD) – This new guidance explains the care that NICE has said works best for people who have or may have non-alcohol related fatty liver disease (NAFLD). It will help you, your family and carers know what to expect from health and care services. This guideline aims to:

  • help doctors understand who is more likely to get NAFLD
  • make sure you go for regular check-ups if needed
  • make sure doctors explain what treatments are available to you.

See the full guidance by clicking here

Download Publication

For full information download the publication:

 

Download Living with liver disease LWL0109.pdf

Last Updated August 2009
Reviewed by: Dr Toby Delahooke, Consultant Hepatologist, Leicester Royal Infirmary, Phil, B.B., Linda, Judith, Lynda.