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Your Stories

Hearing from real people can bring to life what having liver disease, being on the transplant waiting list, having a liver transplant or donating the organ of a loved one really means. Thank you to those who choose to share their story to help others.

If you would like to share your story please click the link below. Your story may be helpful for others.

Click in the menu on the right to read stories about particular liver conditions or other categories.


Share your story



Kirsty’s story

As described on my blog, I was diagnosed aged 20 with autoimmune hepatitis. Unfortunately, this liver inflammation had been ongoing for an unspecified length of time which meant that my liver was already scarred (had …

Read Kirsty’s story
Bronagh’s story

I am 39 years old from Northern Ireland, married and we have a 10 year old son. In May 2014 I started to feel unwell, very tired, no energy, being sick, no appetite, losing weight, …

Read Bronagh’s story
Ingrid’s story

Listen to Ingrid’s story, recorded for NHS Health Today Radio, about her alcohol related liver disease and subsequent liver transplant.

Read Ingrid’s story
Satpal Mahal’s story

Surgeons at Queen Elizabeth Hospital Birmingham (QEHB) achieved a world first when they transplanted a resuscitated liver that would have previously been considered unviable. The transplant team successfully revived the liver by pumping oxygenated blood …

Read Satpal Mahal’s story
Jared’s story

Jared’s younger brother Deraj (aka Day) made the most incredible gift by becoming a living liver donor for the boys’ father – Jared shares his family’s amazing story on his blog.

Read Jared’s story
Alexis’ story

I had been feeling slightly nauseous for a while. I would have a normal meal and then would feel a little bit dizzy. After spending a service at the pass in the kitchen, tasting the …

Read Alexis’ story
Amy’s story

Living with a Liver Disease I have thought long and hard about posting and writing this, not only because it’s so personal but in a sense I am laying myself bare for you all to …

Read Amy’s story
Valerie’s story

At first I wasn’t affected by PBC. I was given ursodeoxycholic acid. Went for yearly check-ups. I didn’t suffer from the itching that some people get. But did get the tiredness. I suppose the last …

Read Valerie’s story
Sophie’s Story

When most people hear ‘liver disease’ more often than not they think of alcohol and older men, but here I am, a 32 year old woman who’s been living with a liver disease since I …

Read Sophie’s Story
Jane’s story

I was 20 years old and living a normal life. My partner and I had set our wedding date for Sept 1989. I became ill with weight loss, jaundice, pale stools and dark urine. I …

Read Jane’s story
Jenni’s story

Jenni has been living with Autoimmune Hepatitis since the age of 13 and was put on the transplant list in 2015. November 2015 update: Jenni had a successful transplant and has just been discharged from …

Read Jenni’s story
Stephanie’s story

Around this time last year, I didn’t really think anything of it when my GP said that my liver levels were higher than they should be. She started talking about jaundice and that if I …

Read Stephanie’s story
Craig Miller’s story

My Amazing and Breakthrough Story After years of poverty, alcoholism, crime and near death, I finally have my break in life, my Cirrhosis (I was born with a rare genetic condition called Alpha 1-antitrypsin deficiency) …

Read Craig Miller’s story
Walter Trout

Following a liver transplant, and extensive rehabilitation, the esteemed Bluesman feels strong enough to resume his career of fifty plus years.  Trout shares, “The last year has been one where the blues truly came calling, …

Read Walter Trout
Jon Alward’s Story

In 2006 I was diagnosed with hepatitis C. Since I had no symptoms I did nothing about it until about 2 years ago. Shortly after beginning treatment I took an Addaction course and became a …

Read Jon Alward’s Story
Jade Jackson’s Story

I was diagnosed at 19 just 18 months after having my daughter, which is thought to have been the trigger. I was convinced that having my daughter was the cause of my severe fatigue, although …

Read Jade Jackson’s Story
Gordon Brown’s Story

In January 2011 I went to the doctors with a chest infection whilst chatting to her I mentioned that I had lost a lot of weight. I was then asked to go for a blood …

Read Gordon Brown’s Story
Bob Whatmough’s story

Below is information regarding my health problem and the technology that gave me a new lease of life. A dad-of-four underwent a life-saving liver transplant – just 24 hours after being placed on the NHS …

Read Bob Whatmough’s story
Olivia’s story

Olivia is currently on the transplant list having suffered from Biliary Atresia since childhood. Read her inspiring story on her blog

Read Olivia’s story
Michael Beckett’s story

Michael went to his GP in 2011 feeling unwell. When he was informed that he had alcohol related liver disease Michael stopped drinking immediately. However, the damage to his liver had already been done. Michael’s …

Read Michael Beckett’s story
Nick’s story

Hi my name is Nick Unitt and this is the story of the incredible fight for survival that I have been through. I was born in a council house in 1961, pretty unremarkable but as …

Read Nick’s story
Clare’s story

Well back in January 2013, I decided to change my life, I was unhappy with my job and my marriage, I got a new job and I separated from my husband. I’d made a decision …

Read Clare’s story
Marina’s Story

‘You only have one liver’ I was officially diagnosed with Autoimmune Hepatitis (AIH) in January 2012, but had been treated for it since August 2011.  It was completely unexpected.  Needless to say it turned my life upside …

Read Marina’s Story
Kaye Wragg’s Story

Kaye Wragg, probably best known for her role as PC Diane Noble in The Bill, has grown up with autoimmune hepatitis.  She helped the British Liver Trust raise awareness of liver disease by sharing her story. “Health …

Read Kaye Wragg’s Story
Judith’s Story

A stressful job in the NHS as a Practice Manager for 14 years and difficult relations with her colleagues led Judith to drinking regularly at home in the evenings, bringing her a whisker away from …

Read Judith’s Story
Pat’s Story

Pat Gilbert has been through the trauma of two liver transplants. Within three weeks of receiving her first liver transplant her body rejected it. Another donor was found with an hour to spare, and was successfully …

Read Pat’s Story
Elizabeth Cottrel’s Story

Elizabeth Cottrell underwent a liver transplant 20 years ago, and is now living a very normal life with a very positive outlook. She had complained of nausea and fatigue to her GP in the weeks …

Read Elizabeth Cottrel’s Story
Ken Plummer’s Story

Ken Plummer is a retired Professor of Sociology, and has celebrated over thirty years of his gay partnership. Whilst visiting California in 2005, he was diagnosed with liver failure after suffering a long list of …

Read Ken Plummer’s Story
Ann & Michael Wilde’s Story

While most of us are able to make the decision whether or not to donate our organs, sometimes this difficult choice has to be left to the family.  Michael Wilde, who was born with Cornelia …

Read Ann & Michael Wilde’s Story
Bill Purdue’s Story

Sometimes liver disease occurs for no apparent reason and is only identified when you visit your GP for something completely different. Bill Purdue was diagnosed with diabetes in 2003 and a year later he was …

Read Bill Purdue’s Story
Laura Milby’s Story

I’m a 29 year old mum to 4 year old girl and happily married. My story started in Oct 2013 when I fell pregnant. I had terrible morning sickness and itchy skin which prompted me …

Read Laura Milby’s Story
Joe’s story

In 2013 I suffered acute liver failure from nitrafurantoin induced autoimmune hepatitis. I had been taking this low dose antibiotics for several years for reccurrent water infections and this is believed to of kicked off …

Read Joe’s story
Natasha’s story

I’m twenty-one years old, and I have liver disease. My particular flavour of liver disease is Non-alcoholic Steatohepatitis, which basically means despite not being a drinker, my liver slowly turned to fat, then got inflamed …

Read Natasha’s story
Kim’s story

From a young age I have had headaches, tiredness and stomach pains. I was diagnosed with growing pains and stress by a local paediatrician. Headaches were diagnosed as sinusitis and they suggested an eye test. …

Read Kim’s story
Debbie’s story

My husband Matthew has Budd Chiari Syndrome which was diagnosed 5 years ago after a 9 month battle. The doctor said he was 99% sure it was alcohol related cirrhosis which we kept fighting as …

Read Debbie’s story
Veronica’s story

In late 2013 my husband was given the terrible news that he had cirrhosis of the liver. He was not a drinker – he enjoyed the odd bottle of beer or glass of wine and …

Read Veronica’s story
Ella Overbury’s story

I thought I would share my story with you. I got diagnosed with AIH in November 2012, after a long long struggle. This story is a long one and it starts when I was little. …

Read Ella Overbury’s story
Phil Newham’s story

I am raising money for “The British Liver Trust” by cycling from Liverpool to Leeds in June 2015 as I would like to support their hard work in helping other people with Liver Diseases and …

Read Phil Newham’s story
Maggie’s story

I was born with biliary atresia. Doctors knew I had a bowel problem and they found out from that because I began to get worse and started turning yellow. I have been brought up with …

Read Maggie’s story
Mike’s story

I was diagnosed with Haemochromatosis in 2005 and subsequently cirrhosis in 2009 and liver cancer in 2011. I was put on the transplant list in June 2011 and had a transplant six months later. At …

Read Mike’s story
Zoe Alexander’s Story

Liver disease can develop at any age. At just 35, Zoe Alexander was rushed to hospital with acute liver failure, her life was turned upside down and she wondered whether she would ever see her …

Read Zoe Alexander’s Story