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Support Groups

Many people affected by a liver condition find it helpful to speak to others and share experiences. Meeting face to face can really help and the British Liver Trust facilitates a number of support groups across the UK. These groups can be a real lifeline.

The list below contains both British Liver Trust groups and other related charity support groups which you are very welcome to join. Do call or email them to see if they can help.

Many groups have strong relationships with medical staff and invited health professionals to give talks and answer questions. Groups can be disease specific or more general and usually offer members a mixture of events. They are led by volunteers with first hand experience of liver disease, either patients themselves, carers or health professionals.

We are always looking for ways to expand our support network and set up new British Liver Trust groups. If you are interested in starting a support group in your area, please get in touch. For more information email support@britishlivertrust.org.uk or call 01425 481320.

If you are connected with a support group which you would like to include on our website, or to change any information about your group, please email info@britishlivertrust.org.uk.

Note: if you cannot find the support you are looking for here then please try visiting our 'Useful Links' section for details of other organisations that may be of help.

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Select an area:

Addenbrooke’s Liver Transplant Association (ALTA)

www.alta.org.uk
info@alta.org.uk

AIH Support (national)

Online forum for anyone affected by AIH
www.autoimmunehepatitis.org.uk
Ann Brownlee
admin@autoimmunehepatitis.org.uk

Alpha-1 Awareness (national)

Online information and support for those with Alpha-1 Antitrypsin deficiency.
www.alpha1.uk
info@alpha1.uk

Alpha-1 UK Support Group (national)

Online forum, information and support for anyone affected by Alpha-1 Antitrypsin deficiency.
www.alpha1.org.uk
info@alpha1.org.uk

AMMF (national)

Charity and online support forum for anyone affected by Cholangiocarcinoma (bile duct cancer). They also provide information and support throughout the UK with patients and their carers.

http://ammf.org.uk/forum/

Basildon & Thurrock Liver Support

Please call 01268 593078 for further information

Bath Community Liver Support Group

Meets on the 3rd Monday of the month (except bank holidays) from 6.30pm in Gastroenterology Department waiting area, Ward B57, Royal United Hospital Bath, BA1 3NG.

Sara Gardner
Fiona Ladd
Claire Weaver

ruh-tr.hepatology@nhs.net

Facebook group: https://www.facebook.com/groups/532689996843485/

Berkshire HealthMakers

Berkshire HealthMakers aim to help people better manage their long term health condition and improve quality of life through their six week self-management courses which run throughout the year. Courses are available to anyone living with a long term health condition in East Berkshire (Ascot, Bracknell, Maidenhead, Sandhurst, Slough and Windsor) area.

www.berkshirehealthcare.nhs.uk

https://www.facebook.com/HealthmakersUK/

Blackpool, Fylde & Wyre Haemochromatosis Support Group

www.haemochromatosisblackpool.org.uk
Marguerite Smith
0776 804 2802
margueritesmith@blueyonder.co.uk

C Change Support Group Bath

Meets 2nd Tuesday of each month 2-4pm at Space 2, New King Street Bath or
1st Tuesday of each month 7.30-9.30pm at The Information Takeaway, Monmouth Street, Bath  BA1 2AN
Joe Rowan
jrowan@nhs.net
07875 366004

Caerphilly Liver Support

NEW liver support group for anyone affected by or caring for someone with a liver condition. Meetings take place on 1st Friday of each month from 5pm to 7pm in the community room of Caerphilly Fire Station.
Sarah Lowther
07852 936395
sarah.lowther@britishlivertrust.org.uk

Capital C Group

This group offers support to individuals living with Hepatitis C and their affected family members. The group meets quarterly in the Serenity Café, The Tun, 8 Jacksons Entry, Edinburgh EH8 8PJ.

The first meeting of this new group will be on Wednesday 3rd May 2017.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Cardiff Liver Support

British Liver Trust in Wales support group for those affected by liver disease (and their families and carers).

If you're interested in finding out about the next group please contact: wales@britishlivertrust.org.uk

Club Soda (national)

An organisation that provides a blog, events and courses to support people to change their drinking habits.
https://www.joinclubsoda.co.uk
laura@joinclubsoda.co.uk

Cornwall Liver Support

Meets on the 4th Monday of the month 12-1.30pm at Knowledge Spa, Royal Cornwall Hospital, Truro TR1 3DH.
Carol Kavanagh
carolkav55@gmail.com

Facebook group (Liver-ish Allsorts):  https://www.facebook.com/groups/559485634168975/

Dundee Liver Support

This group is open to anyone affected by any liver condition. The group runs quarterly in Dundee Carers Centre, Seagate House, 132-134 Seagate, Dundee  DD1 2HB.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Edinburgh Alcohol Related Liver Group

Alcohol related liver condition group. Meets twice a year in the evening at the Serenity Café, The Tun, 8 Jacksons Entry, Edinburgh EH8 8PJ.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Edinburgh Genetic /Rare Liver Group for young people

Young persons group. Meets quarterly in the Serenity Café, The Tun, 8 Jacksons Entry, Edinburgh, EH8 8PJ.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Edinburgh Genetic/Rare Liver Condition Group

Adult group that meets quarterly from 6-8pm in the Serenity Café, The Tun, 8 Jacksons Entry, Edinburgh, EH8 8PJ.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Edinburgh Pre & Post Liver Transplant Support Group

This group meets quarterly in the Royal Infirmary Edinburgh and is an invitation only group by referral from clinicans at the Royal Infirmary.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Essex Liver Support Group

Informal support by phone.
Debbie Eady
deb.eady@ntlworld.com
essex.liversupport@ntlworld.com
01799 501869

Exeter Liver Support Group

Meets on the second Tuesday of each month at 6:30pm in the Medical Outpatients Department at the Royal Devon & Exeter Hospital.
Jim Baker
jimbaker87@gmail.com
01363 773807 / 07840 737 439
Facebook group available: http://www.facebook.com/groups/exeter.liversupport/

Family Liver Support Group – Edinburgh

Group offering support to families who are affected by a family member's alcohol and/or drug misuse and raising awareness of the issues that affect them. The group is being run in partnership with Scottish Families (SFAD). The group meets twice a year in the Serenity Café, The Tun, 8 Jacksons Entry, Edinburgh EH8 8PJ.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Family Liver Support Group – Glasgow

Group offering support to families affected by a family member's alcohol and/or drug misuse and raising awareness of the issues that affect them. The group is run in partnership with Scottish Families Affected by Drugs and Alcohol (SFAD). The group meets twice per year at 12 Queens Crescent, Glasgow G4 9AS.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Forth Valley Support Group

This is a liver support group for all liver conditions open to patients, carers and family members. This group runs quarterly at The Hub, 45 Vicar St, Falkirk FK1 1LL.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Glasgow Pre & Post Transplant Liver Group

This group meets twice per year in Glasgow Royal Infirmary and is by invitation only from the transplant team.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Glasgow Rare/Genetic/Autoimmune Liver Conditions Group

This group is open to patients, family members and carers affected by a rare, genetic or autoimmune liver condition. The group runs quarterly in The Connal Building, 34 West George Street, Glasgow, G2 1DA

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Glasgow Waverley Care Hep C Support Group

This is a peer support group, facilitated in conjunction with Waverley Care in Glasgow. It is held on the last Thursday of every month at Waverley Care, 12 Queens Crescent, Glasgow, G4 9AS.
Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

Grantham Addaction

www.addaction.org.uk/lincolnshire
grantham@addaction.org.uk

Gwent Liver Support Group

Group providing ongoing support for patients, relatives and carers of those living with liver disease in the local area. Meets in The Chapel, St Woolos Hospital, Newport, NP20 4SZ from 6:30pm on the following dates:

29 October 2018
26 November 2018
7 January 2019
4 February 2019
4 March 2019
1 April 2019
13 May 2019
3 June 2019

LiverNurseAdviceLine.ABB@wales.nhs.uk

No need to book - just come along and meet the team, learn about available services and chat to others affected by liver disease.

Haemochromatosis UK

www.haemochromatosis.org.uk
office@ironoverload.org.uk
helpline@ironoverload.org.uk
Advice line: 03030 401102

Hep C Positive Swindon

Meets on Mondays 6.30-8.30pm at Broadgreen Community Centre, Salisbury Street, Swindon SN1 2AN.
An informal group aiming to provide support and information for those affected by Hepatitis C.
hepcpositive@swads.org.uk

Hep C Trust Support Groups (London)

Meets at the Hep C Trust offices, 27 Crosby Row, London SE1 3YD. Informal support and information meetings run every other Monday except bank holidays. All welcome at 6pm for refreshments with meeting from 6.30pm to 7.45pm.

Sam
helpline@hepctrust.org.uk
0845 223 4424
0207 089221

Website:  www.hepctrust.org.uk/support

Hepatitis B Positive

Website and information line for people with Hepatitis B
www.hepbpositive.org.uk
0800 206 1899

ICP Support (national)

Provides support and information on ICP via moderated social media groups and a telephone support line.
www.icpsupport.org
supportline@icpsupport.org

LISTEN Support Group

The Group is for all those listed for transplant or post transplant at Kings College Hospital London. Meetings take place from 2pm to 4pm, on the third Monday of every month in the Liver Seminar Room (located in the Institute of Liver Studies, 2nd floor Cheyne Wing, Kings College Hospital). Meetings include a talk on a special topic for 30-45 minutes followed by general discussion and sharing of experiences.
Paul McKie
paul.mckie@nhs.net

Liver Transplant Online Support Group UK

Online group offering peer to peer support for anyone pre or post liver transplant.
www.facebook.com/groups/livertransplantonlinesupportgroupuk/

LIVErNORTH

Adult Liver Patient Support Group Charity based at the Freeman Hospital, Newcastle upon Tyne.
www.livernorth.org.uk
Joan Bedlington
info@livernorth.org.uk
0191 3702961

Llanelli Liver Support

Support group for anyone living with or affected by liver disease. Meets on the third Thursday of each month in the boardroom at the Prince Phillip Hospital, Llanelli, SA14 8QF

Sarah Lowther
sarah.lowther@britishlivertrust.org.uk

Manchester Royal Infirmary Liver Patients Support Group

Meets at Manchester Royal Infirmary
Esther Pears
esther.pears@cmft.nhs.uk
0161 276 8772

Norfolk and Norwich Liver Group

Group meets bi-monthly at the Norfolk and Norwich University hospital, Jack Prior Unit, Room 25, Level 3.
Marjorie Dingle
marjorie.dingle@hotmail.com
01362 695624

Northamptonshire Liver Support Group

David Walker
info@northamptonshireliversupport.org
07801 399218

Northern Ireland Transplant Association

Information and support for Transplantees living in Northern Ireland.
www.nitransplant.org
07926 060491

PBC Foundation (national)

PBC Foundation
0131 556 6811
info@pbcfoundation.org.uk
www.pbcfoundation.org.uk

Plymouth Friends of Liver Lifeline

Meets 4th Thursday of every month from 6pm at Derriford Leisure Centre, Derriford Hospital, PL6 8DH
www.friendsofliverlifeline.co.uk
Sheila & Stephen Connolly
groupfoll@gmail.com
01752 934942
Michael Stratford
stratford.michael227@gmail.com
01752 317672

Portsmouth Hepatitis Support Group

Danny Sullivan
02392 297364

Portsmouth Liver Group

Meets weekly at St Mary’s Recovery Centre (formerly Block C), Milton, Portsmouth 11am-2pm .
Offers one-on-one support and counselling for those with Hep C.
Lee Devereux
07503 348338

PSC Support (national)

Information, research and support for anyone affected by PSC
Helpline: 01235 253545
info@pscsupport.org.uk
www.pscsupport.org.uk

Queen Elizabeth Liver Patients Support Group

Meets at Queen Elizabeth Hospital, Birmingham.
Alan Hyde
liversupport@blueyonder.co.uk
www.uhblsg.org.uk
01902 679333

R-Space Recovery Group Liverpool

Help and support for people in recovery or who want to achieve or maintain their abstinence or sobriety. R-Space helps people overcome isolation and unhealthy living practice.

Meetings in north Liverpool (L11) and south Liverpool (L18) on a weekly basis.

r-spacegroup@outlook.com

 

Renfrewshire Pre & Post Liver Transplant Support Group

This group is a patient led support group for pre and post transplant patients, their carers and family members. Meets quarterly in Paisley Abbey PA1 1JG.

Amy Caffrey
07824 056686
amy.caffrey@britishlivertrust.org.uk

RLUBH Liver Support

Meets 4th Monday of each month in the Gastroenterology Lecture Theatre (opposite clinic L)  6.15-7.30pm
Royal Liverpool Broadgreen University Hospital Liver Support
Jayne Wilkie

Royal Victoria Hospital Liver Support Group

www.rvhliversupportgroup.org
Donald Cairnduff
dcairnduff@msn.com
07701 029347

Soberistas (national)

Articles, chatroom, life stories and information on alcohol reduction. Membership fee may be required.
Visit website
enquiries@soberistas.com

SOS Cancer Support Group

Meets on the 3rd Thursday of each month from January 2018 at Cancer Care, Slynedales, Slyne Road, Lancaster LA2 6ST. Supports patients and carers with personal experience of stomach, oesophageal, liver or pancreatic cancers in the Morecambe Bay area.
http://www.sos-cancersupport.uk/
Phil Carey
Ian and Jinty Hay
ian@sos-cancersupport.uk

Southend Hepatitis C Peer Support Group

A CRI Gateway service meets every Friday at 2pm.
Nick
sajid.mahmood@cri.org.uk
01702 613392

St James’s Liver Transplant Support Group

www.stjamesltsg.org
Janet Atherton
athertonjanet@aol.com
07864 521213

The Recovery Partnership – Coventry

Health and Wellbeing group for Hepatitis C and co-infected patients. Meets first Thursday of every month 1.30pm - 3pm at 8 Ironmonger Row, Coventry CV1 1FD.

Sarah Coleman
s.coleman@cw-recovery.org.uk
01789 206770

The Recovery Partnership – Rugby

Health and Wellbeing group for Hepatitis C and co-infected patients. Meets third Wednesday of every month 1.30pm - 3pm at 1 Regent Place, Rugby, CV21 2PJ

Sarah Coleman
s.coleman@cw-recovery.org.uk
01789 206770

Torquay Hep C support

Group not currently running but some support is available at Torbay Hospital. If you need support or are interested in forming a support group in this area please contact support@britishlivertrust.org.uk

West Sussex Support Group

Support for patients, family and friends affected by any liver condition. The group meets regularly in Chichester, email Jim Cullen for details:
lucyaj@zoho.eu

Wilson’s Disease Support Group (national)

www.wilsonsdisease.org.uk
Valerie Wheater
val@wilsonsdisease.org.uk
01233 364982