Latest News:
back to top

Patient and Carer Support and Information

The Trust has information regarding support for specific liver conditions on the individual website page for that condition - see Liver conditions.

There is a directory of support groups and information on how to join our online community in our Find Support section.

Other organisations offering support and information

Please note the Trust is not responsible for the accuracy of information on any sites we do not manage and by providing a link we are not giving any endorsement of that site.

Abbeycare is a provider of specialist residential alcohol treatment and detoxification centres, with rehabs in Scotland and Newmarket. We treat people suffering from alcoholism and the problems associated with alcohol dependence and alcohol misuse.

Action on Addiction
Charity which offers high quality, effective residential rehab and community based addiction treatment.

Alcoholics Anonymous
Charity which aims to help people give up alcohol through peer support and sharing of experiences.

Alpha-1 Awareness UK
UK Charity supporting sufferers of Alpha 1 Antitrypsin Deficiency, a genetic condition, which in adults affects the lungs and in infants, children and some adults affects the liver.

Alpha-1 Foundation US
A not-for-profit Florida corporation dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency.

Alpha-1 UK Support Group
UK support group run by alphas for alphas, to help and advise, backed by the UK's leading medical experts in the field of Alpha-1 Antitrypsin Deficiency. Provide support and education for individuals, families, carers and friends affected by Alpha-1 Antitrypsin Deficiency and grow a social network for patients, by providing a discussion group focusing on how better to cope with their condition, aiming towards improving quality of life.

AMMF – the Cholangiocarcinoma charity
AMMF is a UK cholangiocarcinoma (bile duct cancer) charity. They provide information and support to those who need it, campaign to raise awareness, and encourage and support specialised research teams in their work towards better diagnostic techniques and treatments and, ultimately a cure. They work throughout the UK with patients and their carers, clinicians, healthcare professionals, researchers, politicians and policy makers.

AntiCoagulation UK
Registered charity dedicated to the prevention of thrombosis (blood clots), raising awareness of the risk of blood clots and how to help prevent them by providing information, education and support for patients and healthcare professionals

BACP British Association of Counselling and Psychotherapy
An online directory to search for a professional counsellor in your area.

Berkshire Healthcare Healthmakers
Group of volunteers with long term health conditions in Bracknell and Ascot who offer peer support to teach others how to manage long term health conditions, deliver training to help others become HealthMakers, and act as Patient Partners who work closely with local health services to improve patient care and quality of life.

Carers Direct
Free, confidential information and advice to help you as a carer. Helpline: 0300 123 1053. Lines open 8am - 9pm Monday to Friday, 11am - 4pm at weekends.

Care Oncology Clinic
A private clinic in London providing cancer treatments to target the metabolic processes and pathways of cancer cells that may also complement standard care therapy.

Carers UK
Information, advice and support for carers.

Children’s Liver Disease Foundation (CLDF)
Charity concerend with care for babies and children with liver disease and their families through support, information and research.

Counselling Directory
The purpose of the site is to provide a counselling support network, to find a counsellor local to you. This is a free, confidential service. The website also contains a number of sections on emotional disorders (types of distress section) and provides some useful statistics.

Disability Rights UK
An organisation working for equality of rights for anyone with a disability and providing basic information about benefits, tax credits, social care and other disability related issues for claimants.

Gillian Advocates
Gillian Advocates provides information about cholangiocarcinoma (another name for bile duct cancer).

Haemochromatosis Society
Registered  charity that supports people affected by haemochromatosis, and their families, with information, a helpline and support groups.

Hepatitis C Trust
Charity for anyone affected by hepatitis C.  It is a patient-led and patient-run organisation offering information, support, a helpline and advocacy.

Hepatitis Scotland
Hepatitis Scotland is the national third sector organisation, providing support and leadership to voluntary sector organisations in tackling viral hepatitis in Scotland.

Hope Support Services
Organisation supporting young people when a close family member is diagnosed with a life-threatening illness.

Hypnotherapy Directory
Lists qualified/registered hypnotherapists for support with issues such as alcohol dependency or weight loss.

ICP Support
Charity providing support and information on ICP (Intrahepatic Cholestasis of Pregnancy) via moderated social media groups and a telephone support line.

Marie Curie 
Marie Curie Nurses provide free nursing care to cancer patients and those with other terminal illnesses in their own homes.

National Organisation for Foetal Alcohol Syndrome UK (NOFAS)
Organisation supporting people affected by Foetal Alcohol Spectrum Disorders (FASD) and their families. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.

PBC Foundation
Scottish registered charity offering information, a helpline, and advocacy for anyone diagnosed with PBC (Primary Biliary Cholangitis)

PSC Support (Primary Sclerosing Cholangitis
PSC Support is a registered charity that helps anyone affected by PSC with information, a helpline, facebook group and email support.

Relate offers counseling for help with relationship difficulties.

Confidential non-judgemental emotional support, 24 hours a day.

St Bernard Support
Charity that specialises in providing information regarding financial well-being matters to people with life affecting illnesses. Their affiliated not for profit partnership SBS Financial Services is also able to provide FCA authorised independent financial advice regarding pensions, insurances and estate planning matters tailored for people affected by illness

The Haemophilia Society UK
Registered charity that provides information and support for people affected by haemophilia, von Willebrand's and related inherited disorders.

The Patients Association
Charity providing patients with an opportunity to raise concerns and share experiences of healthcare. Through their helpline, correspondence and research they learn from patients the issues that are of concern and work towards improving healthcare.