The Trust actively campaigns on a range of issues, ensuring that the patient voice is heard, to improve services for those affected by a liver condition, promote early intervention and diagnosis, and to raise awareness. Current campaigns include:
Love Your Liver
We launched our Love Your Liver campaign in 2012 to raise awareness, promote good liver health and offer practical advice to the public on reducing risk factors. The campaign includes community-based Love Your Liver screening and scanning events, supported by liver doctors and nurses from local hospitals, an online liver health screening tool and media work to highlight the issues. For more information please visit our Love Your Liver section.
All Party Parliamentary Groups on Alcohol and Hepatology
We are active members of these groups to promote discussion of all alcohol and hepatological issues, to raise matters of concern with, and make representations to, government and other policy makers. View the latest report.
Campaigning on Liver Cancer
The British Liver Trust has joined with four other charities to form the Less Survivable Cancer Taskforce.
People with the six less survivable cancers in England are almost five times less likely to survive beyond five years, compared with patients with one of the 11 more survivable cancers. People with the more survivable cancers have a 64 per cent chance on average of living beyond five years, whereas people with less survivable cancers only have a 14 per cent chance.
The Taskforce, which is made up of the British Liver Trust, Pancreatic Cancer UK, The Brain Tumour Charity, Action Against Heartburn and Core, aims to
- Increase investment in research
- Raise awareness of the symptoms of the six less survivable cancers
- Diagnose and treat the cancers more quickly
- Increase the number of clinical trials and treatments approved
- Work with Government so that targets are seto improve survival
To get involved and to read more about about the Less Survivable Cancers Taskforce, visit www.lesssurvivablecancers.org.uk
Please sign up to show your support.
Alcohol Health Alliance (AHA)
As part of this group of 70 experts from industry and government we are campaigning for the introduction of a new alcohol strategy which calls for a 50p minimum price per unit of alcohol, mandatory labelling of alcohol with health and nutritional information, and a range of policies to address the health effects of the national issue of excessive drinking.
Hepatitis C – New Treatments
Recent requests from NHS England to NICE to delay new hepatitis C treatments are not in the best interests of patients – see our consultation responses:
James Lind Alliance
The Trust is working with the James Lind Alliance on two projects to gain public, patients, clinicians, researchers and other stakeholders’ opinions on what research should be addressed in both Non-Alcohol Related Liver Disease and Alcohol Related Liver Disease. Please see more at the James Lind Alliance website.
Lancet Liver Commission
The Trust is a member of the Lancet Liver Commission. The Commission made specific recommendations in its first report (published November 2014) to reduce unacceptable premature mortality from liver disease in the UK. Progress to the recommendations will be reviewed each year for the next 5 years. The second report (published November 2015) shows that there has been some progress, for example with Hepatitis C, but it also highlights the urgent need for more to be done. In particular
- The need for much earlier detection of liver disease by GPs
- The need for equitable effective liver services for all – at the moment there is a postcode lottery for patients with liver disease with many being unable to access specialist care
- Stronger leadership from the Government to tackle the underlying causes of the dramatic increase in liver disease – alcohol misuse and obesity
The British Liver Trust is determined to keep these issues on the public health agenda.
View an abstract of the report here
View the full report (November 2014)
View the second report reviewing progress (November 2015)
New metrics for the Lancet Standing Commission on Liver Disease in the UK (December 2016)
Click here to visit the Lancet Liver campaign
Liver Patients’ Transplant Consortium
This group of charities relates to transplants, NHS and blood. We are currently working on the effects of the changes in the NHS on patient services, including the impact of Health and Wellbeing Boards, commissioning and equality of access to technology.
Liver Task Force
The Trust works with the Liver Task Force to develop and implement actions including commissioning frameworks; patient protocols; patient related outcome measures and patient related experience measures.
NHS Atlas of Variation in Healthcare for People with Liver Disease
The first ever report, issued in 2016, highlighting widespread variations across the across the country has been updated and a second Atlas has now been issued, showing the rate of people dying early from liver disease in some parts of England is almost 8 times higher than others. Read more here
NICE Appraisal Committees
The Trust is part of a number of committees set up by the National Institute for Clinical Excellence (NICE) to represent the patient voice on subjects such as non invasive testing in alcohol related liver fibrosis, new drug treatments for liver related conditions, the viral Hepatitis Advisory Committee and the Obesity Forum.
Obesity Health Alliance
The Trust is a member of the Obesity Health Alliance whose goal is to prevent obesity-related ill-health by addressing the influences that lead to excess bodyweight throughout life. The Alliance does this by developing and advocating evidence-based policy recommendations and Influencing decision makers and the media. For more information please visit the campaign website.
Prescription Charges Coalition
The Trust is part of a group of patient organisations campaigning to extend exemption from prescription charges to all those with long term conditions. For more information please visit the campaign website.
Responses To Consultations
Responding to consultations on behalf of those with liver conditions is a key part of the British Liver Trust’s work. Responses to recent key consultations are listed here
Wales Liver Disease Plan
The Trust is part of the delivery team for the Wales Liver Plan. Please see our initial response to the Plan here: BLT response to Welsh liver disease delivery plan