AIH Support (national)
Online forum for anyone affected by AIH
www.autoimmunehepatitis.org.uk
Ann Brownlee
admin@autoimmunehepatitis.org.uk
Cardiff Liver Support
British Liver Trust in Wales support group for those affected by liver disease (and their families and carers).
Next meeting Monday 7 October 2019 from 5.30pm to 6.30pm, The Jubilee Room at The Sports and Social Club, Heath Park Way, University Hospital of Wales CF14 4XW. The Specialist Clinician and liver nurse from Univerity of Wales hospital will be attending.
Gwent Liver Support Group
Group providing ongoing support for patients, relatives and carers of those living with liver disease in the local area. Meets in The Chapel, St Woolos Hospital, Newport, NP20 4SZ from 6:30pm. The next meetings are:
13 May 2019
3 June 2019
LiverNurseAdviceLine.ABB@wales.nhs.uk
No need to book - just come along and meet the team, learn about available services and chat to others affected by liver disease.
Haemochromatosis UK
www.haemochromatosis.org.uk
office@huk.org.uk
helpline@huk.org.uk
Advice line: 03030 401102
Hep C Trust
The Hepatitis C Trust no longer run support groups but have a UK national helpline, staffed solely by people who have had experience of living with hepatitis C. They are open from Monday to Friday from 10.30am to 4.30pm, on 020 7089 6221 or by email to helpline@hepctrust.org.uk
In addition to this, they also run a Freephone national helpline specifically for prisoners to access information and support on 0800 999 2052
Office: 020 7089 6220
Email: admin@hepctrust.org.uk
Website: www.hepctrust.org.uk/support
ICP Support (national)
Provides support and information on ICP via moderated social media groups and a telephone support line.
www.icpsupport.org
supportline@icpsupport.org
Llanelli Liver Support
Support group for anyone living with or affected by liver disease. Meets on the second Tuesday of each month from 1pm to 3pm at Llanelli Fire Station, Corporation Avenue, SA15 3PF
Sarah Lowther
sarah.lowther@britishlivertrust.org.uk
PBC Foundation (national)
PBC Foundation
0131 556 6811
info@pbcfoundation.org.uk
www.pbcfoundation.org.uk
PSC Support (national)
Information, research and support for anyone affected by PSC
Helpline: 01235 253545
info@pscsupport.org.uk
www.pscsupport.org.uk
Wilson’s Disease Support Group (national)
www.wilsonsdisease.org.uk
Valerie Wheater
val@wilsonsdisease.org.uk
01233 364982